A New Year

One year ago today, I didn’t know where I was headed.  I only knew that I had resolved to never again hide my illness away. It was terrifying and liberating all at once. Terrifying to reveal something I had tried to hide for so long, liberating in the freedom that only sunlight can bring. In that moment, I began to shed the shame I carried for all these years. That is the best way I can describe it, and it was the one word that returned again and again as I worked through my feelings. Shame for having tried to kill myself. Shame for wanting to try again. Shame for never telling those closest to me the struggles I faced. Shame for these ongoing feelings and the belief that all of it was my own fault. The adopted shame of our society regarding mental illness.

These are powerful forces, not easily displaced.

I have documented here, my journey through therapy, of thinking that I was incapable of joy and finding that hidden in my despair was a glimmer of happiness. It has been a mostly upward trajectory. I have stumbled, more than  a few times, especially since ending therapy last Spring, but the downward pressure has been limited and fleeting.

Even in the face of cancer, or maybe, now that I think of it, because of it, I changed my focus and began looking for ways to live a more rewarding and meaningful life. Depression, even in its mildest forms, is insidious because it makes you believe that no matter what you do, you will never change the course of your life. Not today. Not tomorrow. Not ever. And you begin to believe this. The perception becomes reality, and any aspirations, hopes, or dreams that begin to rise to the surface, depression stifles.

I have long desired to find another job, something that is giving back to my community. The thought would sometimes emerge, over the past 20 some years, but I never seemed able to muster the courage to walk away from stability. Then, amidst my inner exploration in therapy, came cancer, and I realized that I couldn’t wait any longer.

I began laying the groundwork for my departure. I had no idea what I might do, but I had three criteria:

  1.  I would work fewer hours and not be on call.
  2.  I would work for an organization that is helping people in my community, especially those in most need of help.
  3.  I would work within 10 miles of my home.

These were difficult parameters, but I felt that they could be realized. I started looking not long after my surgery. There were several positions that I was really excited about, early on. Unfortunately, I was not getting any interviews and usually not even a rejection email.

After several months of this, I started to get discouraged. That self-doubt started creeping in. It undermined my confidence and my determination. Thankfully, more opportunities came, and all of a sudden I had a phone interview, and the request for an in-person interview, and the request from another employer for a video interview. Within the span of just two weeks, I went from having no real prospects to being offered a job.

One year ago, I took a step, a large and frightening step, and it has lead to a whole new chapter in my life. For someone for whom the future always looked dark, I see nothing but hope and lightness before me now. I am nervous, scared, excited, and optimistic. I look at my bright future and I am filled with joy at its prospects.

Taking the Training Wheels Off

It’s hard to fathom that just nine months ago I started down this path. I made the decision, back in September, that I was done hiding my illness away and that I would do whatever I needed to do to help myself heal.

I had a very frank discussion with my primary physician — something I had not done before. We discussed therapy and possible medication. Unfortunately, that visit ended in a diagnosis of prostate cancer, which is another story in and of itself.

I started therapy sessions through my insurance (Kaiser) the week after meeting with my physician, but I was unhappy with my therapist after the first session. Not only did I think we were not a good fit, but I felt that the Kaiser coverage was never going to cut it. The Kaiser therapist told me that my coverage would only allow for approximately five individual sessions. After that, I would have to go into group therapy (which is cheaper.) Part of my struggle has always been feeling comfortable talking to people I don’t know. Group therapy was not going to work for me, at least not right now.

Someone I met, after making myself public, suggested the psychology clinic through Pacific University. They have two clinics that are run by their graduate students. They don’t take insurance, but I wasn’t concerned about that. I just wanted to get some help.

While a learning environment might seem like an unlikely place to get quality care, I found that it was far better than the professional program offered by Kaiser. I was impressed by the thoroughness of the intake sessions and felt quite comfortable with my student therapist almost immediately.

In the past, when I sought therapy, I always seemed to wind up with therapists who were fixed in their thinking, and, consequently, I always came away feeling that their care was more about their prescribed path than about trying to help me find a path that would work for me. Here, I at once felt comfortable and confident in my therapist.

Each therapist is under the direct mentorship of their graduate supervisor. The sessions are recorded, so they can discuss them and learn from them. The recordings are destroyed shortly afterward. I wasn’t thrilled with having a video camera on me, but I dealt with it, and after a month or so, I mostly forgot that I was being recorded.

There were weeks that were better than others. Some weeks were quite difficult, and save a few weeks where I felt like we were stalled, I always felt like we were making progress. When we began, I wasn’t sure when or how these sessions would end, but a few months ago, during one of the sessions, something happened. I still couldn’t tell you what, exactly, but I could suddenly see the horizon.

It was just a dark, featureless void before, but now there was a horizon and I was approaching it, like the way one can see the crest of a mountain range as they approach the summit, and you know that you will soon be standing at the top looking back down the steep path you just climbed up.

I stumbled, not long after, and thought that everything I had been building was all for naught. That setback proved to be another turning point, however, and rather rapidly I found myself cresting the summit.

I can’t say that I am cured. That will never be the case, but I am on solid footing and feel better than I have in a long, long time.

When I started therapy, I was skeptical that it would have much effect, but I was also determined to give it my full attention and effort. While I can’t say that my previous therapists were not good, I can say that they were not good for me, and whether it was this therapist, or my motivation, or a combination of factors, this has been a rewarding and enlightening process. I looked forward to my sessions each week.

A month or so ago, I began to see that the sessions would come to an end soon. I was both elated and terrified: elated to have traveled so far — much further than I thought possible, terrified because I would have to do this on my own from here on out. I would have to take all that I learned and trust that I could manage it without my weekly check-ins.

I worried that I would start backsliding, that I would lose the ground I had gained. I don’t want to go back to where I was, and maybe that’s not really possible. I have changed. My perspective has changed. Whatever may come, I am different now, and the way I look at my depression is different too. I know there will be lows and highs ahead, but I think I can manage.

This balance between excitement and fear is similar to how I felt when the training wheels came off my bicycle. I was riding around the block one sunny, summer day and I happened to look down at my back tire while I was cruising along the gravel street behind our house. To my astonishment, my training wheels were not touching the ground — at all. I completed my circuit around the block, rode right up to my dad, and asked him to take my training wheels off. He was quick to oblige. I climbed onto my bicycle, now untethered from those clunky, extraneous wheels, but also free to fall from side to side, I stepped on the pedals, and away I flew, filled with excitement, pride, fear, and joy.

So too, now I find myself free to fall, but confident in my ability to keep myself upright. That’s a feeling I have not had in a very long time.

Dweller on the Threshold

The cancer is gone. My surgery was a success, and I am almost entirely recovered. I am playing soccer again — albeit on a limited basis — and I can do so without pissing myself. I call that a win.

So why don’t I feel happy?

Since finding a therapist that I liked, last fall, I have been going to sessions every week, save a couple of weeks right after my surgery, and it has been helping. There have been some weeks where I felt what I can only assume many people call normal, but save a few brief hours here or there, I can’t say that I’ve been truly happy. I’ve felt steady, and unaffected — confident even — but never happy.

Last week I was bragging to my therapist about how “even” I felt the week before, about how I seemed to be looking at the world with a different perspective that allowed difficulty to roll off of me. I wasn’t getting bogged down in things I couldn’t control, and I was far more assertive than I had been in a long time.

But then, suddenly, a day later, all that disappeared and I started sliding backwards. There was no cause, that I could discern, aside from being a bit overly tired, and the more I attempted to find something upon which I could at least blame for the set back, the less certain I became. I began to feel a great weight upon me, as if something was sitting on my lungs, and everything became heavy and labored. After a week of this, I began to doubt all the progress I had made in the preceding months. Deflated and discouraged, I was sinking back into a very familiar hole, and the thought crossed my mind that I would, in fact, never experience joy in my life.

That thought, alone, was crushing. What if I can never get out of this?

I lacked the strength or courage to tell anyone what was happening, and that certainly made it worse. It’s a hard place to be. I am not one to ask for help, especially when I don’t know what might help me, or even how to express what I’m experiencing. So, I remained silent until my next session.

Even then, it took most of the session before I admitted the idea that I might never feel joy. I acknowledged that I knew the thought wasn’t accurate, even while it felt as if it was. And then it occurred to me that I am unable to walk across that threshold to joy. I don’t know why. I don’t know what is holding me back. I just know that doorway is closed to me. I am a dweller on the threshold.

At the time I admitted this, it didn’t dawn on me how my semantics had changed. In the past, when talking about the barriers between me and happiness, I always spoke about it in terms of a wall, or of being in a pit, something far more permanent and foreboding to overcome. But a threshold? A threshold is meant to be crossed. It requires only a certain amount of energy, a certain resolve, and the other side can be achieved.

Here, in a moment where I could see nothing good, there is such promise.

A year ago, I wrote a short play called Into The Sun. A local company had put out a call for short plays on the theme of tolerance. I hadn’t intended to write anything, but a vision came to me a few days later, and I realized that it was a play. I thought I was writing one thing, but when I was done, it was something else. It seems I was already working on this, long before I knew it consciously. The central character is walking along the bank of a river, into the rising sun, and she is stumbling over the river rocks, but she is determined to keep going. She is blinded by the sun, and her feet are sliding out from under her, but she keeps stepping forward.

I may be a dweller here, but I think I might just step over that threshold sooner than I think.

The Future Keeps Me Awake

I have started half a dozen posts, since my “coming out” back in September. Things have been changing so quickly that I was unable to focus enough on any of it, and my thoughts were so scattered, my mind shifting through too many emotions, that I couldn’t find the words to properly express myself.

As it turns out, and this is probably not a surprise to anyone, but as hard as it was to be public with my mental health, the harder part was actually living up to the expectation and following through with my plan. Writing it, and making it public, was far easier than living it.

The difficulty in talking about it was not for a lack of support. I was heartened by the well wishes from so many people, some of whom I have never even met. It is clear that I am not alone in my struggles.

While finding the words for myself were hard, I noticed that it seemed hard for others as well. When I ran into someone, I could see them thinking about it, but they were either afraid to bring it up, or just didn’t know how. The subject is so taboo that even though I declared it open, they could not bring themselves to discuss it. Such is the power of our long, tacit ban on this topic.

There were a few brave souls who were able to speak with me about it. I am grateful for them. And there were times where some people did reach out, in person, but I was not in a place or frame of mind to have that conversation, so I diverted it.

It’s a tricky thing, on both ends. All I can suggest is that none of us should give up. If the conversation fails today, please try again tomorrow. If it fails tomorrow, try again next week. Because we are so used to NOT talking about it, finding the right way in is a challenge. We must be persistent. Don’t give up. I won’t give up either.

To that end, I am happy to report that I have found a therapist, and,  not only do I like my sessions, I think they are actually helping. I never thought I would say that.

What is less encouraging, and the main reason I have had such a hard time focusing these past few months, is that I was diagnosed with prostate cancer at the end of November.

I met with my Physician, in October, to discuss my depression and to make a plan on how to treat it. Through our discussion, and upon hearing that my older brother was battling prostate cancer, she ended up ordering my PSA screening early this year. It came back elevated, which lead to a trip to the Urologist, which lead to a biopsy, which lead to a diagnosis. Had I not gone in to see my physician, it might have been another 8 months to a year before I would have had another PSA screening.

The cancer appears to be contained, and I have elected for surgery as my primary treatment.

The operation is just hours away.

I can’t sleep.

I am not so worried about the various side-effects of treating my cancer, and there are several. Ask any man who has gone through this. I am more worried about the unknowns, about the things outside of my control. I can choose how I cope with side-effects. I can deal with that (I think).  What worries me are the variables over which I have no say.

Giving one’s self over to that uncertainty is a much harder task.

When I was eight years old, I broke my femur in two places. I was in a bed for nine weeks: three weeks in traction in the hospital, followed by six weeks in a body cast in our living room. I spent another month, or so, relearning how to walk.

That experience taught me a lot about what is and is not in one’s control, especially when it comes to a damaged body. I’m trying to keep that eight year old in mind, as I move forward, but, like my writing from September, it is easier said than done.

For now, all I can do is hold tight to those around me and let them carry me forward.

Never let the future disturb you. You will meet it, if you have to, with the same weapons of reason which today arm you against the present. — Marcus Aurelius

No More Silence

When the news broke, last month, about Robin Williams, like many, I was shocked and saddened. His suicide catalyzed many people to talk openly about mental illness. I, too, felt an urge to add my voice, and I did, if only in a cursory way, but there was something even larger stirring in me. I wasn’t sure what it was, but I could feel it building.

There were many eloquent voices in the days, and weeks, that followed, and I felt that my voice had nothing to add, so I did not speak, even though something was welling in me. Then, a few days ago, a local actor, who I did not know, though I knew of him, committed suicide, and the last vestiges of what had been holding me back fell away. I can remain silent no more.

I’m sorry that I did not know the man who died this week. I saw him in a couple of plays I reviewed over the past year and a half, but aside from those moments, I knew nothing of him. My heart is with his family. I hope they can find some peace.

Every time someone kills themselves, whether I knew them or not, I am anguished. I feel the loss in the very deepest part of my being, because I know how desperate they are. I have been there.

This will come as a shock to some people, because I rarely speak of it. In fact, many people closest to me know nothing of what I am about to say, though they may have suspected it. And this is the very essence of the problem; silence is the killer. It is silence that is the undoing, and I resolve here to not be silent for one day more.

I have suffered from depression my entire adult life, even longer. I first contemplated suicide when I was just thirteen years old. Too few people know that about me. Most of my family does not know that. I do not speak of it, because I, like many people who suffer from depression, feel an overwhelming sense of shame. We feel that we are failures for being so weak.

Our society has no place for weakness, for indecision, for uncertainty. We are a society of winners. Strong. Proud. We value the self-made person who can pull themselves up by their own bootstraps. Weakness is for losers.

We feel shameful of our illness, because our society teaches us that it should not be discussed openly. And if it is discussed, it is in whispers, and hushed tones, behind closed doors. We are apologetic, even when we do find the strength to bring it up, as if we are imposing on the world. Our loved ones feel shame by proxy, as if our weakness is a reflection of them too. Everyone prefers to just not discuss it, as if not speaking of it will make it go away, and the silence wins out.

And so it goes. And those of us who find ourselves in dark, desperate places, suffer on in silence for fear of what others may think of us. We fear the stigma of the illness, sometimes, even more than the illness itself.

No more. I say, no more. I am tired of hiding my illness away, and I am tired of sanctimonious people, that do not understand depression, minimizing our struggles. We live with an illness that is trying to kill us, and we do so mostly in silence. Enough.

First, no. I am not in crisis. This is not a call for help from me. I am writing this in an attempt to own my depression and to end the cycle of silence. If, by speaking openly about this, others can find the courage to break their silence as well, so much the better. Secondly, if that is pity you are beginning to feel, stop. Stop, right now. I don’t want your pity. I don’t need your pity. Pity, as a response to depression is meaningless. It is nothing more than the expression of your inability to empathize with my condition. Be a friend. Talk. Listen. Love. But save your pity for abused animals, or orphaned children, if you must. I want none of it.

Many people, who have never experienced depression, believe that depression can be cured, that if one takes the right pill, or learns to appreciate the good things, or finds God, or opens themselves to love, whatever, depression will go away. That might be true. There may be people for whom depression is a temporary condition, but for me, and many people like me, there is no remedy. There is no prescription. Depression never leaves.

For more than thirty years, my depression has ebbed and flowed. Some days, some weeks, some months, or years, are better than others, some worse. Every now and then, when I manage to go for a year or more, without feeling its full effects, I think maybe I’ve conquered it, that it’s gone for good, but it always comes back. Always. I can never tell when it is coming, or when it might leave. It lurks. Even in my happiest moments, I can feel it, faintly, tugging on me. There is a lead weight shackled to my soul. It can not be removed. But I believe I can bear that weight. With you all, I can bear it.

My depression has nothing to do with a lack of love, or abuse, or drug dependency. It was not caused by some traumatic event. I had loving parents, and close friends in my youth, many of whom are still very close to me. I have a devoted, caring family. A nice home. A good job. And on, and on, and on. There is no reason. There is no why. There is only the weight, and the silence.

A friend of mine, several years ago, made the decision to get sober. He made this decision publicly, because he knows that he can not do this alone. I acknowledge this too, for my depression, and believe that none of us can do this alone. It is the silence that kills us. By making this decision, and making it public, I hope that you will be able to help me when I need it most. By saying it now, when I don’t need help, maybe it will be easier to say when I do.

I hope that others, who read this, who are also suffering in silence, can find the courage to break this cycle. We can not do this alone. We are all in this crazy life together. We must help one another, but no one can help if they don’t know you are drowning. Reach out, speak up, make whatever noise is necessary, but do not remain silent.

For many years I have worried that my depression will one day over-take me, that I will be unable to claw my way out from under it, but I have been doing this, mostly, alone. Forgive me for my silence. Not one day more.

I am so very grateful for everyone in my life. I appreciate all of you. Please understand that when someone is depressed, they don’t love you any less. They are just too overwhelmed to see any other options. Depression is not reasonable, so don’t try to reason with it.

We can help one another by being more attentive and receptive to that commonly tossed away greeting, “How are you doing?” We need to slow down a little, and deepen the connections we have with one another.

If any of my friends reading this need to talk, please call me, come over to my house, email me, whatever, but don’t remain silent.

For those of you I don’t know, there are people that understand what you are going through. Call 1-800-273-8255. You can also go to their website: http://www.suicidepreventionlifeline.org/ You are important. Please reach out. They can help.

I tried therapy a few times. It never stuck with me. Writing has always been my therapy, but I have been writing too little these past twenty years. I think that’s changing. I am finding my voice again, and I will not be silent for one day more.

Be good to each other, and keep talking. I will leave you with a poem I wrote many years ago, but have kept hidden from view.

Twenty years ago, in the dark,
desperate hours, I walked
up there on that cliff, above the soft,
sandy shore. I muttered. No.
I whispered. I screamed,
softly. I floated off
the precipice. I nearly died
above the sea.

I see the curls
of your hair spreading
in the green waves
as we splash
against the current.
My daughters. My wife.
My life. All these years, pulled
back from that ledge.

I walked, on that cliff,
twenty years past. The boy,
above. I lift my daughters,
dangling, over the waves,
and their screams of glee pierce
the evening air, echoing
up to that boy, standing
all alone.